A Life Remembered

Well, we did it. We made it through September. I won’t say it was perfect, or pretty, or somehow magically made our grief less intense or desperate to be on the other side. But we did feel held, loved, and as though we were able to honor Deacon’s 8th birthday and his first heavenly anniversary.

When I would think ahead to the anniversary of his passing, and how we might spend that day, so many ideas ran through my mind. Balloon-releases, painted rocks, gathering at the graveside, etc. Somehow, none of those felt very “Deacon”. We stalled and put off making any concrete plans. Then a friend mentioned just meeting at the land where we are building. Just to be together. And that felt right. So we pulled our grief circle together, admitted we didn’t know how to possibly spend such a day, but that we knew we wanted to do it just has we had the day he passed…together.

The only probably accurate thing I did going into that day was set my expectations low. It was going to be a rough day. My kids would bicker about something random. A plan would fall through. Someone would be unhappy. And none of that would matter. I prepared myself to meet each moment with perspective and calm. And it did seem to help.

We spent the morning just our family together, being rather lazy and slow to get going. We decided to go by his gravesite just our little family. The kids hadn’t seen his finished headstone yet, and it did seem appropriate to stop by on such a day. It went as I expected. Some kids were hot. Others didn’t like bugs. Our newest foster son was clingy and fussy.

But there was good too. We watched the video that played at his funeral. And we laughed about a couple memories. We reminded the kids that this wasn’t fair, that the year they’ve endured was impossibly hard, and how proud we are of them. And even more, we reminded them that he’s not lost with the body buried below his stone. Deacon is in the presence of his Holy Father and that heaven is his home. All of our true home….he just happened to beat us there. A reminder I needed as much as them.

We spent the rest of the afternoon resting and doing our own things. Then, in the evening, we headed to our land. The family and friends who have sat with us in our grief the closest this year began pouring in. And we were so, so loved.

It was just as it should be. Deacon’s dream evening. Perfect weather, kids everywhere, games, four wheelers, and food. Then, just before sunset, we headed to a clearing to write notes on lanterns and send them up into the night. A grasping, inadequate way to attempt to connect to my son, but somehow still comforting and joyous to be a part of.

I still don’t know how you should spend the day your child leaves your arms on earth. But I do know, when I crawled into bed that night, I thought a little less about what we were doing at that time the year before, and a little more how very supported and blessed we are.

This doesn’t close the chapter on our sorrow. I woke up the next day, and he was still gone…my arms were still desperately longing for him. But I can look back on this year and see the markers of God’s faithfulness. I could never have dreamed surviving a year of not having one of my children. I’m certain I would have found that impossible. God’s promises are true though. He does comfort. His hope is real. And now, after surviving all the “firsts” without him, we face all the “seconds”. Knowing our tribe is close, our God is good, and our family is incredibly strong.

“Because maybe 80 years on this earth will feel like 20, and maybe, I’ll blink my eyes and you’ll be back in my arms. For now, I’ll soak every moment in, try hard as I can to spread every ounce of love, try as I can to live for a reason, so that on that day, I’ll run to you and tell you everything I was able to do, not for me. But because of you.” Lexi Behrndt

365 days without you. 365 days closer.

Share The Love

September brings both Deacon’s birthday, and the anniversary of his passing. It would be very simple to just focus on our sadness. I could attempt to explain the level of desperation and panic that wells up in my heart when I allow myself to just WANT HIM. More than our sadness though, Derek and I want this month to be about his LIFE. We want to celebrate our little boy who brought sunshine, mischief, and JOY into the world. We want to remember and honor how faithful our God has been this year. How He has consistently and creatively met us in this darkness. In September 2020, I boldly and confidently declared God good, even as my world laid motionless in a hospital bed. One year later, I can honestly repeat: God is good.

We’ll be honoring Deacon’s incredible life this month by doing random acts of kindness in his name with these cards, and we’d love to challenge you to do the same! Will you join us? Knowing that his spirit of love and excitement for surprising others will be spreading out all over our city and further is an incredibly hopeful thought to our still broken, tired hearts.


Want to join in? Here’s how!

Local: We’ve printed 100’s of cards and they’ll be in a basket on our porch, in our cars, and with us. Drive by and grab 1 or 20, ask us if you see us, let me know you want some and I’ll track you down!

Print Your Own: Click on #sharethelovedeacon in the menu of this blog and you can easily print your own at home! Just follow the directions.

Mail: Just need me to mail you some cards? Happy to! Just let me know and I’ll pop them in the mail.

Tag Us: What creative ways did you find to bless others? We want to hear how Deacon inspired you! Please tag #sharethelovedeacon so we can see!

Can’t get your hands on or print any cards? That’s ok! You can still share the love and share with us. We’re just blessed knowing that he’s inspiring others to take a look around them and find ways to bless others.


Thank you in advance for joining us in this small gesture of honoring our Deacon. Thank you for the year of loving us well.

September

It’s September. I wouldn’t need to look at a calendar to know that. I can feel it ache in my bones. A buzzing in my nerves and a thudding in my brain. September has haunted the last couple months. September carries the weight of the year.

All the lasts were in September. The last full family trip to Table Rock, Deacon’s last birthday on earth, his last first day of school, the last time I brushed his hair off his forehead, the last time I heard his voice, the last time I hugged him, smelled him, felt him, talked to him. The last time I told him I loved him.

All the lasts spill into all the firsts. Our first minutes, hours, and days without him. Every first holiday, birthday, and milestone lived without him here. The first season of baseball he didn’t get to suit up for. The first foster care placements he didn’t get to hold and feed. The first day of second grade he didn’t clamber out of the car for. The first day of the new house starting that he didn’t get to ride in the excavator and help dig.

A whole year of surviving the firsts while reliving the lasts has been building to this month. I’ve been quiet, in this space. In truth, the summer was hard. Harder than I’d prepared myself for. Typically my favorite of the seasons, this one felt like a trudge. Summers are for traditions. Pools, library, splash park, snow cones, and bike rides. Doing it all without Deacon felt flat. But fighting to live and give life to my four still-here kids meant putting a smile on my face while tears fell behind sunglasses. The memories that popped up throughout the summer and made us laugh also fell away to the emptiness in knowing there won’t be any new memories to laugh about. The upkeep of house and family and constant kids with constant new ideas of what we should do that day felt like treading in deep water…just trying to keep my head above. In the midst of hard, I tried to stay in tune to God’s gifts. The surprise meal on an especially hard day. The sweet three day old baby needing our love for a couple days. The song on the radio reminding me of God’s goodness. His little “I see you’s” that felt like a deep breath after days of shallow breathing. The days were hard. And sad. And beautiful. And filled with gratitude. And that pendulum of extreme emotions left me overstimulated and exhausted and sad. So the blog went quiet. I still wrote, but they were writings for me. Writings for God. Writings for Deacon. And sometimes I just sat quietly with my words. And, as it does, time moved forward and we’re here to September.

Derek and I have talked about what this month might look and feel like. How to prepare ourselves and our kids for it. What would honoring the last days of Deacon’s life look like? In truth, we don’t know and we won’t know until we’ve moved through it. A year of surviving the firsts has taught me that trying to prepare for it is pointless. I do know that I want to celebrate the parts of Deacon that I admired the most. And to embrace and radiate those qualities. So, I’ll be brave. And inclusive. And fiercely loving.

Almost a year closer to you, brave boy.

Weston Deacon

I’m an aunt again!! Weston Deacon Thuss joined the world on Monday and we’re all so very much in love. Kelsey and Dan are adventurers at their core and I’m so excited for them to start this life-changing one.

If we’ve talked at all, you know that bragging about my sister Kelsey is one of my favorite things to do. Playmate, confidant, inspiration, secret-keeper…she’s one of my favorite people ever. She lets me flash the insecurities I’ve had since childhood and then holds them up to truth. We’re as different as night and day, and yet somehow the long history of love, that only sisters can share, makes those differences a source of pride in each other. She’s the one true witness to the entirety of my life and, rather than make me feel uncomfortable, it makes me feel at home.

Getting to now join her in the wild ride of motherhood is an incredible source of joy. And, getting to do it sharing the name of a little boy who had the ability to make us both brave, is almost more than my heart can handle.

Weston Deacon: may you be fearless in love, just like your cousin. May you be curious and brave, just like your mama.

A Grand Adventure

3 years ago, we started thinking about our family, our home, and what we wanted in the years ahead for our growing kids. We’d always had a dream to spread out on some land, so we started actively pursuing plots of land when they came up around us. Turns out it’s rare, and a bit of a fight, when they do! After missing out on a couple opportunities, the one we’d been praying for came along. In November of 2019, we became the slightly shocked, and incredibly ecstatic, owners of some acreage just outside of our little town!

Our first (of many) meals at the land.
We bought the kids “land boots” for
tromping and climbing.

For the last year and half we’ve been clearing, hiking, camping, tree house building, swinging, four-wheeling, sledding, pond-digging, and falling in love with this land. With the quarantine year of 2020 quickly approaching, we had no idea just what a gift this space would be. We spent HOURS of safe time playing there. I’ve fallen in love more with each season we’ve experienced there.

Wayward trees don’t stand a chance!
Fires and snow.
My very favorite spot on the land .

During these months, we dreamed of what it would mean for our kids to grow up here. In our imagining we never fathomed it would be possible that Deacon wouldn’t be there with us. The thought of moving there without him was an impossible one for a while. But soon, the kids begin begging to be there again, asking when we would get to live there, and sharing their dreams for the space. We knew we still needed to move forward with this adventure. Deacon LOVED being at the land. The freedom, space, and ever-changing landscape were his happy place. He’s there still. I feel close to him when I’m there and know that I’ll forever see him up in a tree, in the creek, or creating something out of scraps of wood.

While it took a little longer than we planned originally, things are finally moving along and our new home is GOING UP!!

The house finally staked out!
Foundation dug!
Flours being poured!
Trusses!!
Walls going up!

We’re grateful to God for this place and its our deep hope and prayer that it becomes a welcoming place for many.

Im still a little in shock that the house is going up! I’m so excited for this grand adventure!

Father’s Day

His answer is always “yes” when it comes to loving on our kids. He picks us up off the ground. He’s fearless (which is where Deacon learned it from). He loves babies whether they came from me or from the car seat of a case worker. He shows fatherly love to those who wouldn’t have it otherwise. He’s one of the good ones. I’m not sure they know how lucky they are yet, but someday they will.

It must be very difficult
To be a man in grief.
Since “men don’t cry” and “men are strong”
No tears can bring relief.

It must be very difficult
To stand up to the test.
And field calls and visitors
So that she can get some rest.

They always ask if she’s alright
And what she’s going through.
But seldom take his hand and ask,
“My friend, how are you?”

He hears her cry in the night
And thinks his heart will break.
And dries her tears and comforts her
But “stays strong” for her sake.

It must be very difficult
To start each day anew.
And try to be so very brave-
He lost his babies too.

—Eileen Hagemeister

9 Months

9 months and 14 days ago I sat on this dock and watched Deacon open his 7 year old birthday presents. 14 days later he was gone.

This morning, I watched my girls giggle and chase bubbles in the spot he’d exclaimed over his new skateboard. It feels like yesterday. It feels like 100 years ago.

Oh Deacon. I can still hear you in this place. Your laughter bounces off the dock rails. Both an invitation and a balm. Its not the same here.

“Are you tired? Worn out? Burned out on religion? Come to me. Get away with me and you’ll recover your life. I’ll show you how to take a real rest. Walk with me and work with me—watch how I do it. Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you. Keep company with me and you’ll learn to live freely and lightly.” Matthew 11:28-30 from The Message

September 5, 2020

8 Months

I still don’t understand it. I would have plotted a different way. Yet, without logic or reason, I still feel God’s goodness. For the gift of Deacon when God didn’t have to give him to us in the first place. For the gratitude that bubbles up in me every time I think of how I got to be his mom. Yes, the grief is relentless, and the sorrow is suffocating….but….I have to believe that the God who moved mountains to bring Deacon to us, and has sustained us through these hellish 8 months, cannot be anything but good.

I’m learning, after eight “19th’s” have come and gone, to look for God’s “I see you’s”. The little gifts He sends throughout the day to get us through. My high school girlfriends coming over with lunch. Friends going out of their way to come by for hugs and to drop Crumble cookies off. Brecken and Aven’s first softball game after last year’s season was cancelled. Sweet texts from family and friends. Prayer. It’s all God’s love out loud.

8 months closer to you Bub. My joy-filled boy. We’re doin’ it.

Mother’s Day

Last year, Deacon was discharged from the hospital on Mother’s Day. Because of Covid, I had stayed the entire time with him instead of taking turns with Derek. I was so thankful to be back with all my kids (and my shower and bed), but also so weary and frustrated with another hospital stay. The helplessness of lack of answers, and loneliness of trying to find them was taking a toll.

I didn’t know then what a blessing it was to enter and leave the hospital with him beside me. How much I would long for those annoying and disruptive stays. I’d give anything to sleep on a plastic “couch” and eat from a vending machine again. To have four days of one-on-one time with my albuterol and steroided up little boy.

I asked God how I would survive Mother’s Day without him. His answer came in the form of distraction and sleep-deprivation. Two precious babes needing the love I’m desperate to still be giving Deacon. I think Deacon would approve. He would have been the first to shout “Happy Mother’s Day!” at me and squeezed me as tight as he could. He also would NOT have been able to keep my surprise a secret (my own four-wheeler!) and would have been full-body excited for me to see it.

It wasn’t my first Mother’s Day to not feel complete. To feel like I’m the least person qualified to be celebrated when I’ve so often failed at motherhood. Other years when I’ve birthed babies much to early for this world, or said goodbye to toddlers I’d raised as mine for 18 months. It’s a complicated day. My heart longs for children not in this picture while at the same time being so deeply thankful for my four.

Grief can cast a shadow on life’s most beautiful moments. Like a 6 year old handing you his Mother’s Day drawing. I fought to make it a day of peace, hope, and love, and some moments I was successful. I put on a smile, thank God for them, and ooh and ahh over all the homemade goodness they make me. I think of my incredible mom and mom-in-law and the qualities they embody that I want in my parenting. I thank my lovely, grace-filled friends who are walking this messy, wonderful, mama path with me. And I sigh and take a breath when the day is finally over. Another “first” without him survived.

A New Park

At the beginning of the month our family was honored to be included in a special event at the Wichita Children’s Home. A years-long project, put together by bunches of selfless and tireless individuals who are passionate about foster youth, was recently completed! A beautiful new park on the WCH campus. A safe place for foster children and families to get fresh air and move bodies. While in police protective custody, it can be unsafe for children to be out in public. This playground is a secure spot for the 100’s of children who come through the Home each year.

Before the big ribbon cutting event, the Children’s Home called to let us know they had plans to include Deacon in the park and that they wanted to create a play space there in his honor. We cried (per usual) and said we’d he honored to have him remembered this way.

The day of the ribbon cutting featured Kansas wind in all her glory but it also showcased the heart behind so many people in Wichita in the creation of this park. We were humbled and excited to be included. While the kids were a little disappointed the scissors weren’t massive, we had a great time helping to officially open the playground.

There is a water feature still in the works (you can see the water pump on the left in this picture) that will flow down through the rocks. This is the space that will celebrate Deacon. We can’t wait to update pictures when this section is finished.

It’s perfect because Deacon loved water and certainly would have found a way to end up drenched.

It was a good morning. Good for the Children’s Home, whom we love. And good for our hearts. We say so often at things like this, “Deacon would have loved this”. The bitter part is, if he were still here, lovely things like this wouldn’t be happening. While I’d give anything for that playground to not need a section in Deacon’s honor, it does help in our healing. And in our hunt to see and feel pieces of him out in the world still. It helps to know that a little boy, who was once a foster child himself, made his love of others loud enough to be heard and recognized by others. Deacon would have loved this.