A Life Remembered

Well, we did it. We made it through September. I won’t say it was perfect, or pretty, or somehow magically made our grief less intense or desperate to be on the other side. But we did feel held, loved, and as though we were able to honor Deacon’s 8th birthday and his first heavenly anniversary.

When I would think ahead to the anniversary of his passing, and how we might spend that day, so many ideas ran through my mind. Balloon-releases, painted rocks, gathering at the graveside, etc. Somehow, none of those felt very “Deacon”. We stalled and put off making any concrete plans. Then a friend mentioned just meeting at the land where we are building. Just to be together. And that felt right. So we pulled our grief circle together, admitted we didn’t know how to possibly spend such a day, but that we knew we wanted to do it just has we had the day he passed…together.

The only probably accurate thing I did going into that day was set my expectations low. It was going to be a rough day. My kids would bicker about something random. A plan would fall through. Someone would be unhappy. And none of that would matter. I prepared myself to meet each moment with perspective and calm. And it did seem to help.

We spent the morning just our family together, being rather lazy and slow to get going. We decided to go by his gravesite just our little family. The kids hadn’t seen his finished headstone yet, and it did seem appropriate to stop by on such a day. It went as I expected. Some kids were hot. Others didn’t like bugs. Our newest foster son was clingy and fussy.

But there was good too. We watched the video that played at his funeral. And we laughed about a couple memories. We reminded the kids that this wasn’t fair, that the year they’ve endured was impossibly hard, and how proud we are of them. And even more, we reminded them that he’s not lost with the body buried below his stone. Deacon is in the presence of his Holy Father and that heaven is his home. All of our true home….he just happened to beat us there. A reminder I needed as much as them.

We spent the rest of the afternoon resting and doing our own things. Then, in the evening, we headed to our land. The family and friends who have sat with us in our grief the closest this year began pouring in. And we were so, so loved.

It was just as it should be. Deacon’s dream evening. Perfect weather, kids everywhere, games, four wheelers, and food. Then, just before sunset, we headed to a clearing to write notes on lanterns and send them up into the night. A grasping, inadequate way to attempt to connect to my son, but somehow still comforting and joyous to be a part of.

I still don’t know how you should spend the day your child leaves your arms on earth. But I do know, when I crawled into bed that night, I thought a little less about what we were doing at that time the year before, and a little more how very supported and blessed we are.

This doesn’t close the chapter on our sorrow. I woke up the next day, and he was still gone…my arms were still desperately longing for him. But I can look back on this year and see the markers of God’s faithfulness. I could never have dreamed surviving a year of not having one of my children. I’m certain I would have found that impossible. God’s promises are true though. He does comfort. His hope is real. And now, after surviving all the “firsts” without him, we face all the “seconds”. Knowing our tribe is close, our God is good, and our family is incredibly strong.

“Because maybe 80 years on this earth will feel like 20, and maybe, I’ll blink my eyes and you’ll be back in my arms. For now, I’ll soak every moment in, try hard as I can to spread every ounce of love, try as I can to live for a reason, so that on that day, I’ll run to you and tell you everything I was able to do, not for me. But because of you.” Lexi Behrndt

365 days without you. 365 days closer.

September

It’s September. I wouldn’t need to look at a calendar to know that. I can feel it ache in my bones. A buzzing in my nerves and a thudding in my brain. September has haunted the last couple months. September carries the weight of the year.

All the lasts were in September. The last full family trip to Table Rock, Deacon’s last birthday on earth, his last first day of school, the last time I brushed his hair off his forehead, the last time I heard his voice, the last time I hugged him, smelled him, felt him, talked to him. The last time I told him I loved him.

All the lasts spill into all the firsts. Our first minutes, hours, and days without him. Every first holiday, birthday, and milestone lived without him here. The first season of baseball he didn’t get to suit up for. The first foster care placements he didn’t get to hold and feed. The first day of second grade he didn’t clamber out of the car for. The first day of the new house starting that he didn’t get to ride in the excavator and help dig.

A whole year of surviving the firsts while reliving the lasts has been building to this month. I’ve been quiet, in this space. In truth, the summer was hard. Harder than I’d prepared myself for. Typically my favorite of the seasons, this one felt like a trudge. Summers are for traditions. Pools, library, splash park, snow cones, and bike rides. Doing it all without Deacon felt flat. But fighting to live and give life to my four still-here kids meant putting a smile on my face while tears fell behind sunglasses. The memories that popped up throughout the summer and made us laugh also fell away to the emptiness in knowing there won’t be any new memories to laugh about. The upkeep of house and family and constant kids with constant new ideas of what we should do that day felt like treading in deep water…just trying to keep my head above. In the midst of hard, I tried to stay in tune to God’s gifts. The surprise meal on an especially hard day. The sweet three day old baby needing our love for a couple days. The song on the radio reminding me of God’s goodness. His little “I see you’s” that felt like a deep breath after days of shallow breathing. The days were hard. And sad. And beautiful. And filled with gratitude. And that pendulum of extreme emotions left me overstimulated and exhausted and sad. So the blog went quiet. I still wrote, but they were writings for me. Writings for God. Writings for Deacon. And sometimes I just sat quietly with my words. And, as it does, time moved forward and we’re here to September.

Derek and I have talked about what this month might look and feel like. How to prepare ourselves and our kids for it. What would honoring the last days of Deacon’s life look like? In truth, we don’t know and we won’t know until we’ve moved through it. A year of surviving the firsts has taught me that trying to prepare for it is pointless. I do know that I want to celebrate the parts of Deacon that I admired the most. And to embrace and radiate those qualities. So, I’ll be brave. And inclusive. And fiercely loving.

Almost a year closer to you, brave boy.

9 Months

9 months and 14 days ago I sat on this dock and watched Deacon open his 7 year old birthday presents. 14 days later he was gone.

This morning, I watched my girls giggle and chase bubbles in the spot he’d exclaimed over his new skateboard. It feels like yesterday. It feels like 100 years ago.

Oh Deacon. I can still hear you in this place. Your laughter bounces off the dock rails. Both an invitation and a balm. Its not the same here.

“Are you tired? Worn out? Burned out on religion? Come to me. Get away with me and you’ll recover your life. I’ll show you how to take a real rest. Walk with me and work with me—watch how I do it. Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you. Keep company with me and you’ll learn to live freely and lightly.” Matthew 11:28-30 from The Message

September 5, 2020

7 months

At this time seven months ago, we were wrapped in the final, sacred hours with our son. Completing tasks for him one last time. Doing my motherly duties once more for him before handing him back to his Heavenly Father. Bathing him. Combing his hair. Dressing him in fresh, new clothes. Moments that in life seem mundane and never ending, but at the edge of death they were hallowed and spiritual.

Somehow we’re here. Seven months without him. Without his smile. His hugs. His noise, movement, mess, enthusiasm, and bad ideas. I would never have thought I could survive seven months without one of my children. I still wonder often how I am. If I am.

So much of our life looks and acts normal. We still have movie nights and play Catan too late into the evening. We drag kids to ball practices and home from track meets. We go on dates and laugh with friends. I do laundry and sweep the floors.

So much isn’t normal though. I open emails with mock-ups of a headstone with my son’s name on it. I write thank you notes with words like “that’s a beautiful way to honor Deacon’s memory”. I go out of my way to drive away from the children’s hospital when going right by it would get me to my destination sooner. I fight back panic attacks when the guy at Best Buy goes on and on about the O2 monitor on the new Apple Watch. I crawl into bed with my sleeping children and watch their chest rise and fall and listen to their whisper-quiet breathing trying to figure out why I couldn’t keep Deacon breathing. And if I stop watching them, will they stop too?

Maybe normal from the outside. But not normal really. Our life has been wadded up like a piece of paper. And while we’re choosing the path towards healing….fighting for color and life…and slowly unfolding that piece of paper back out, I know it will never be smooth again. The wrinkles of grief and loss will always be there, no matter how flat we get that paper.

In the midst of it all, there is peace I could not explain, that I neither deserve nor understand. A couple weeks ago was Good Friday. It was hard but also such a gift to my hurting heart. A marking in time that I could intimately relate to. Death of a son. Suffering. Sorrow. Grief. Pain. Pleading for another way — any other way.

But then comes Easter Sunday. Rebirth. Beautiful restoration. Hope. A reminder that our pain and suffering were taken so that we can and will see Deacon again. In truth, Deacon is the one living. And I’m white-knuckle-clinging to the hope that I’ll being alive one day too.

So while some days have normal moments of errands and paying bills, other days I dig my fingers into the soft earth above where my precious son is buried and weep until there is nothing left in me. Apologizing to him over and over that I didn’t do more. That I couldn’t save him. That I didn’t know. I just didn’t know.

Either way, time keeps moving. We keep loving. Because I can’t think of a better way to honor Deacon than to feel this agony, acknowledge our wound, and rise in our pain…rather than be buried by it.

I miss you, Deacon. Ache for you. I’m trying. To be the things I loved most in you. I want to make you proud. I want to be the kind of mom who rises. You’re in our every moment. I feel you.

This sorrow is a small price to pay to be your mother.

5 Months

5 months without him. I wouldn’t be able to say that out loud. Typing it seems just ridiculous.

I still feel like a bumbling mess. Trying to help my little family through this. I look at clues for one another’s method of coping, even though I don’t understand them. I try to decide what God’s purpose could be in giving signs of warning before, and comfort after, but not bothering to save Deacon. I’m trying to figure out how to act normal enough to make my still here children feel safe, while not pretending everything is ok.

It’s not ok. I just miss Deacon. We miss him. Our life feels unnatural. I’m still shocked. Bewildered. Sad.

We’re relearning our roles. Our family dynamics have been altered and I can see the kids struggling to find grip again. Settle back into their place. Who’s the instigator? Peacekeeper? Fun starter? Rule follower? The part they had before doesn’t always work with such a spirited cog missing. His roles are up for grabs and while we talk about living out the parts of Deacon we loved most in him, I also fear I’m burdening them with my desire desperate need to keep him alive in them somehow.

5 months. I miss my son.

New Year

2020 is the year that ended me. I’ve felt confused, scared, lonely, isolated, anxious, shamed for going out, shamed for staying in. My kids have been in school, out of school, and every version in between. We’ve cancelled trips, family gatherings, church, and restaurants. Political division, racial tensions, pandemic confusion. And that was the easy part. I also buried my son. I have every reason to join the world with a raised middle finger to 2020 as we cross over to 2021. I hope to never experience pain so horrific ever again.

And yet. I find myself wanting to stay here, in this mess of a year that brought unimaginable pain, because its the last year he was in. The last year that will have memories associated with him. The last summer at the lake, last birthday, last meal cooked for him, last time I kissed him goodnight, and the last time I rubbed his back awake. How do I leave that all behind? I don’t know how to step into a year that won’t have one single new memory of him.

I’m not ok even though I’m ok. 2020 taught me that joy and grief can coexist. That I can beg for my own death in the same breath that I pray for life. It taught me grace and rage. It taught me an existence with one foot on Earth and one foot in eternity and that no one dies before their time. Its the last year I will ever have with my beautiful boy in his body. He is Home and its impossible to imagine beginning a new year, continuing a lifetime without him physically here.

In the middle of a good closet cry, a friend texts:

Forget the former things; do not dwell on the past. See, I am doing a new thing! Now it springs up; do you not perceive it? I am making a way in the wilderness and streams in the wasteland. Isaiah 43:18-19

It’s not easy but its there….a new beginning. Not formed by the abandonment of the past, but from the shards of it. 2021 doesn’t change 2020 (or every year before). My past is still real, still filled with love, still valid.

I can’t say happy. Just….New Year.